Living with Neurofibromatosis

I hope that by writing my second book about living with neurofibromatosis (NF) and by including the stories from other people who suffer from NF, it will help to give a better understanding of how differently people are affected by this cruel condition.

The condition does not only affect the person who has the condition but their families too.

The book provides my continued diary of how I cope with living with Neurofibromatosis.

Like my first book (Kirsty's story living with Neurofibromatosis and Scoliosis) this book contains a Glossary of the medical terms used in the book, information from some of my doctors and from other people who are involved in my medical care.

I believe in making the most of what life has given me, I can't change the past, but hopefully I can try and make my future go my way.

My Neurofibromatosis caused me no problems until I was eight years old when my life changed forever.

I was also diagnosed with scoliosis at this time. I now live a very different, but full life, where my family and a large group of friends support me, some of whom have made a contribution to this book with their own thoughts. I can no longer do some of the things that I loved to do; I had to give it all up due to being in so much pain.

My diary tells how and why my life changed due to the problems caused by Neurofibromatosis and Scoliosis.

I love to help others and NF and Scoliosis has made me the person I am today.