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Image for Unlocking Erik : A Freedom Journey to Restore the Speech of Those with Locked-In Syndrome

Unlocking Erik : A Freedom Journey to Restore the Speech of Those with Locked-In Syndrome

By: Kennedy, Philip R.

1536174556 / 9781536174557
Paperback / softback
01/06/2020
Published 01/06/2020
United States
152 x 229 mm, 0 grams 187 pages

This book depicts the trials and tribulations when trying to restore speech to Erik who was locked-in (paralyzed and mute) at age 16.

We implanted electrodes into his brain, initiating a decade of breakthrough research in speech recovery.

It led to the author's own brain implant and the consequent successful offline development of the speech prosthetic whereby mute, locked-in people can speak.

Part 1 is Erik's story of how he became locked-in following a brainstem stroke, and our efforts to break him out of his locked-in state by helping him speak.

It describes my decision making, the tremendous contribution of his family, their anguish and the very relevant comparison with famous locked-in people, namely, Stephen Hawking and Jean-Dominique Bauby (The Diving Bell and the Butterfly).

Part 2 documents conversations between myself and Erik's Dad, Eddie.

Eddie describes how he was trained in a rehabilitation hospital to take care of his son.

His 16-year devotion to his son is unparalleled and heroic.

This part also contains important contributions from other researchers in the field, in a question and answer format.

Part 3 is a condensed version of the scientific aspects of this research written for the non-scientist.

Figures and videos on the website augment the text. Importantly, there is a full documentary associated with this book.

BIC:

MJN Neurology & clinical neurophysiology, PSAN Neurosciences

Our price£58.10
RRP £77.99
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