Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children.

Such research involves children as subjects and is conducted in the home and in communities.

It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children.

This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community. Table of ContentsFront MatterExecutive Summary1 Introduction2 Housing and Health3 Grimes v.

Kennedy Krieger Institute: Revisiting the EthicalIssues4 Characteristics of Housing Health Hazards Research5 Community Involvement6 Parental Permission, Consent, and Payment7 Researchers' Responsibilities8 Research OversightReferencesAppendix Biographical Sketches of Committee Members and Staff